{"id":10487,"date":"2025-09-24T13:55:40","date_gmt":"2025-09-24T12:55:40","guid":{"rendered":"https:\/\/www.specialeffect.org.uk\/?p=10487"},"modified":"2025-09-25T09:04:25","modified_gmt":"2025-09-25T08:04:25","slug":"introducing-independence-to-matt","status":"publish","type":"post","link":"https:\/\/www.specialeffect.org.uk\/news\/introducing-independence-to-matt","title":{"rendered":"Introducing independence to Matt"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"563\" class=\"alignnone size-full wp-image-10490\" style=\"margin-bottom:0;\" src=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Main-1000.jpg\" alt=\"Smiling man sitting up in a hospital bed\" srcset=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Main-1000.jpg 1000w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Main-1000-250x141.jpg 250w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Main-1000-700x394.jpg 700w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Main-1000-768x432.jpg 768w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Main-1000-120x68.jpg 120w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/p>\n<p><strong>When Matt was admitted to hospital with a spinal injury sustained from a serious cycling accident, he couldn\u2019t speak due to a tracheostomy and his only body movements were small twitches in his foot and the fingers of one hand. With his independence gone, he was facing the isolation and uncertainty of many long months of rehabilitation.<\/strong><\/p>\n<p>The hospital staff soon established that his greatest fear was not being able to signal for attention. Rosy, one of their speech and language therapists, had heard about our <a href=\"https:\/\/www.specialeffect.org.uk\/how-we-can-help\/use-your-eyes-for-independence\">StarGaze<\/a> service and contacted us to ask if we might be able help Matt with his communication.<\/p>\n<p>Our specialist StarGaze team visited Matt in intensive care and saw enough reliable movement in his right index finger for him to control a precisely positioned small joystick that could move a mouse cursor around a computer screen. They then carefully mounted a button switch beneath the movement in his right foot that he could use as a mouse click.<\/p>\n<p>Using these limited movements, Matt was able select letters and words from an on-screen keyboard on a computer that could speak out messages that were typed into it. He was soon independently making his needs and thoughts heard by creating sentences or selecting from a list of personalised phrases. It was an instant release from the restriction of yes or no responses, and his communication with family, friends and hospital staff was completely transformed.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"563\" class=\"alignnone size-full wp-image-10494\" style=\"margin-bottom:0;\" src=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No2-1000-1.jpg\" alt=\"Man in hospital bed looking at a communication grid on a computer screen\" srcset=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No2-1000-1.jpg 1000w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No2-1000-1-250x141.jpg 250w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No2-1000-1-700x394.jpg 700w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No2-1000-1-768x432.jpg 768w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No2-1000-1-120x68.jpg 120w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/p>\n<p><em>Image above: Matt\u2019s initial equipment setup. He used his finger and his foot to type on a computer that could speak out his messages. The inset image shows a close-up of his finger-controlled joystick.<\/em><\/p>\n<p>This impact of such carefully introduced and highly personalised technology intervention can\u2019t be underestimated. Steve, who&#8217;s another beneficiary of our StarGaze service after Guillain-Barr\u00e9 syndrome suddenly left him on a ventilator with very limited movements, said, \u201cIt gave me back the first little bit of independence and control over my life, something I could mentally grab hold of and build on. I can\u2019t express what a difference it made.\u201d This feeling of release was also emphasised by Peter, a StarGaze beneficiary who we supported in 2024. \u201cIt&#8230; gave me a whole new world,\u201d he said, \u201cIt gave me loads and loads of freedom.\u201d<\/p>\n<p><strong>What is StarGaze?<br \/>\n<\/strong>Our specialist <a href=\"https:\/\/www.specialeffect.org.uk\/how-we-can-help\/use-your-eyes-for-independence\">StarGaze<\/a> teams travel across the UK to deliver highly specialised life-changing support and equipment loans for people in intensive care following a traumatic injury or illness which results in a severe loss of ability to communicate or move. There are no strings attached to this crucial intervention. It\u2019s exceptionally personalised, there\u2019s no charge, and we give a lifelong promise of support.<\/p>\n<p><strong>Reconnecting with the world<\/strong><br \/>\nLike many of us, Matt had used technology in almost every part of his life, staying connected online and enjoying podcasts, chat apps and the internet. He&#8217;d especially loved watching cycling shows on the Global Cycling Network (think Netflix for cycling). Enabling online interaction with the things he loved had the potential to significantly boost his quality of life and mental health, so our team visited him in intensive care again as he began to regain more functional movement in his right arm.<\/p>\n<p>This time the team helped him to try out a number of joysticks that could make the best of his improving hand and arm movements, and eventually opted for a one with a shape that specifically suited his grip. They also replaced his footswitch with a button switch by his right hand. As before, the team created customised on-screen grids to suit his needs, and Matt began to start reconnecting with the world through isolation-busting online activities.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"527\" class=\"alignnone size-full wp-image-10495\"  style=\"margin-bottom:0;\" src=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No3-1000.jpg\" alt=\"Close up of a hand operating a joystick, and two images of computer screens\" srcset=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No3-1000.jpg 1000w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No3-1000-250x132.jpg 250w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No3-1000-700x369.jpg 700w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No3-1000-768x405.jpg 768w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-No3-1000-120x63.jpg 120w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/p>\n<p><em>Image above: Matt\u2019s second equipment setup and two of the screens he was able to navigate. A major part of the setup\u2019s success was the team\u2019s creation of custom on-screen computer grids to give Matt the most efficient access to the things he wanted to do. This level of customisation is almost always important; here, for example, the team created enlarged on-screen scrolling and volume controls as these would otherwise have been very small hard-to-hit targets.<\/em><\/p>\n<p><strong>Lifelong support<\/strong><br \/>\nLike <a href=\"https:\/\/www.specialeffect.org.uk\/what-we-do\/our-work\">all our services<\/a>, our StarGaze support is a lifelong promise. Over the following months our team continued to help Matt as he transitioned out of intensive care, supporting him through video calls and remote onscreen grid updates for the appropriate changes he needed.<\/p>\n<p>This consistency of ongoing support by the same team benefits both the people we help and our StarGaze therapists. Nomi, one of our specialist occupational therapists said, \u201cIt\u2019s really rewarding to be able to spend time getting to know people, sometimes over several years, building a deep understanding of their abilities and needs as they change.\u201d<\/p>\n<p>Liz, another of our specialist StarGaze therapists agrees, adding that it enables greater recognition of small details. \u201cThat\u2019s all-important,\u201d she said. \u201cA support call to setup an extra social media channel on a computer, a small tweak in the settings to make using it slightly easier or faster \u2013 we\u2019re able to invest time and expertise in the small details that often make the world of difference to the person, their families and their support teams.\u201d<\/p>\n<p>It&#8217;s a positive that&#8217;s recognised by the father of Becky, another of our StarGaze beneficiaries: \u201cWe felt like we had never-ending support,&#8221; he said. &#8220;The tweaking and the modifications that Becky so needed all the time \u2026 nothing was too much trouble.\u201d<\/p>\n<p><strong>A breakthrough moment<\/strong><br \/>\nAs time progressed Matt was able to use his joystick to access almost everything he\u2019d previously used on his phone. Eventually, on the team\u2019s last visit to him at his rehabilitation centre, it was a fantastic moment to see him using his own phone for the first time without the need for our equipment.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" width=\"1565\" height=\"824\" class=\"alignnone size-full wp-image-10496\"  style=\"margin-bottom:0;\" src=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Thumbs-Up-875px.jpg\" alt=\"Two images: one of two smiling seated men, the other a close up of a phone being used\" srcset=\"https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Thumbs-Up-875px.jpg 1565w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Thumbs-Up-875px-250x132.jpg 250w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Thumbs-Up-875px-700x369.jpg 700w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Thumbs-Up-875px-768x404.jpg 768w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Thumbs-Up-875px-1536x809.jpg 1536w, https:\/\/www.specialeffect.org.uk\/wp-content\/uploads\/2025\/09\/Matt-Thumbs-Up-875px-120x63.jpg 120w\" sizes=\"auto, (max-width: 1565px) 100vw, 1565px\" \/><\/p>\n<p><em>Image: (left) Matt with Sachin, one of our StarGaze team, (right) Matt using a phone with his finger.<\/em><\/p>\n<p><strong>A vital partnership<\/strong><br \/>\nWorking in partnership with hospital and care staff is vital to the positive impact of our StarGaze service, and in Matt\u2019s case it was a great privilege to work with Rosie, the wonderful speech and language therapist who helped with facilitating visits, incorporating Matt\u2019s technology on the ward, and guiding us with updates. We simply couldn&#8217;t have accomplished such a level of independence for Matt without her and the hospital team.<\/p>\n<p><strong>More than just a technology fix<\/strong><br \/>\nIn 2024 our StarGaze team delivered life-changing support and equipment loans to over 30 hospitals and care settings, working closely with people with severe injuries or illnesses that resulted in the loss of communication and\/or movement. The specialist equipment and software that the team employs ranges from small button switches to eye-controlled technology costing many thousands of pounds, and this is backed with expertise that always takes into consideration the wider practicality of the equipment in terms of the beneficiary\u2019s comfort and the demands of the medical environment.<\/p>\n<p>Matt&#8217;s journey is further evidence that technology, introduced with care, expertise and dedication, can bring significant improvements in quality of life \u2013 not only for those we help who are faced with a sudden and life-changing disability, but also for those who support and care for them.<\/p>\n<p><strong>Can you help?<\/strong><br \/>\n<strong>It costs over \u00a3450,000 each year for our team to bring independence and hope through our StarGaze project, and demand for support is rising on average by 50% each year. We don\u2019t charge anything for this life-transforming service, so <a href=\"https:\/\/specialeffect.enthuse.com\/donatemonthly#!\/\">a monthly donation of just \u00a315 a month<\/a> will help us provide hope when it matters most.<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"When Matt was admitted to hospital with a spinal injury sustained from a serious cycling accident, he couldn\u2019t speak due to a tracheostomy and his only body movements were small twitches in his foot and the fingers of one hand. With his independence gone, he was facing the isolation and uncertainty of many long months&#8230; <a class=\"view-article\" href=\"https:\/\/www.specialeffect.org.uk\/news\/introducing-independence-to-matt\">View Article<\/a>","protected":false},"author":3,"featured_media":10492,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[15],"tags":[],"class_list":["post-10487","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-case-study"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Introducing independence to Matt - SpecialEffect<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.specialeffect.org.uk\/news\/introducing-independence-to-matt\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Introducing independence to Matt - SpecialEffect\" \/>\n<meta property=\"og:description\" content=\"When Matt was admitted to hospital with a spinal injury sustained from a serious cycling accident, he couldn\u2019t speak due to a tracheostomy and his only body movements were small twitches in his foot and the fingers of one hand. 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